Apple is Reportedly Teaming Up with Scientists to Study Your DNA

This is somewhat of a follow-up to yesterday’s article questioning what you want to happen to your stored DNA sample. Apple is reportedly planning to work with scientists to collect DNA for genetic research, as a part of its ResearchKit platform.

ResearchKit collects data from patients via the iPhone, and is said to be a secure portal. People with certain conditions can opt in to participate in various clinical studies and surveys (daily, weekly, monthly, etc.) that can be evaluated and analyzed by medical researchers. The goal is to ultimately improve patients’ health and the ability to care for them. Indeed, those are lofty goals.

Assuming the data is anonymized, I wouldn’t object to that. However, buried in a story on Mashable.com is the sentence, “Eventually, it’s even possible consumers might swipe to share ‘my genes’ as easily as they do their location.” That doesn’t sound anonymous to me.

You can read more in an article by Samantha Murphy Kelly in Mashable.com at http://mashable.com/2015/05/06/apple-dna-researchkit-study.

5 Comments

I will reiterate my strong objections toward DNA being used in any way by Government or for medical reasons without the specific permission by everyone who might object. What is more personal than your DNA. Stop and think about this,
\/
Ok. Now tell me what is more personal.
It is not only an invasion of privacy to steal, buy, donate for purposes that are not just so one can fill in a blank.
Anyone having the DNA test taken is also interjecting those in the family who object to the DNA testing in the first place. Whether this could be a Court case about invasion of privacy, is a matter I have no knowledge to say, but it sure sounds that it is.
If the wrong people get hold of your family history and find that there a gene that indicates you are from a particular group that they hate and want to extinguish – what better place to start is with all of the free genealogy trees on the net and then look for DNA if they feel they need more information about your extended families

Just give this a good thought every day when y ou wake.

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A follow up on my previous post.
My thoughts are right up there with DNA as far as being personal and they are either working on devices to detect what you are thinking or have already perfected it.
Whoever it was who said you won’t miss freedom until you lose it – was right on.

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When you go through the process of buying the DNA kit from Ancestry, you are given an option to opt out of having your DNA used for any
research purposes. Hopefully, those who do not want their tests
used will make use of this option. I did.

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–>”…People with certain conditions can opt in to participate in various clinical studies and surveys…”
I think the operative words are “opt in” – Of course, a court order likely trumps any of that. OTOH, if one is afraid everything he/she does will be subject to Orwellian overview, then life at home will likely soon become boring. Even there … don’t watch TV or use your computer! Never can tell when big brother is spying!

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We are on the threshold of some potentially life changing discoveries for many – but with these come possible downsides as well. I am reminded of the speech given by the William Jennings Bryan character in the book, “Inherit the Wind”:
Progress has never been a bargain. You have to pay for it. Sometimes I think there’s a man who sits behind a counter and says, “All right, you can have a telephone but you lose privacy and the charm of distance. Madam, you may vote but at a price. You lose the right to retreat behind the powder puff or your petticoat. Mister, you may conquer the air but the birds will lose their wonder and the clouds will smell of gasoline.”
It is our responsibility to educate ourselves and then our legislators and then vote for those who seem to understand the issues and the need for some responsible controls without blocking the possibilities.

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